I was sitting in my basement early this week, sorting through the dozens of things I had to do when my wife came down to add one more:
“Do you have anything you’re doing this weekend?” she asked.
I tried not to flinch as I tried to answer in a vague way that would allow me somehow get out of whatever she was about to ask me to build, fix, move or buy while still not admitting I wanted a free weekend.
“I’m not sure right now. Why?”
“There’s that benefit at the park for Jacob…”
Jacob is a 9-year-old boy I’ve written about here before, who has lived through two bouts of brain cancer . We bought his family’s home a few years back and had such trouble doing it, I honestly thought I was going to lose my mind. (Turns out, it was a shitty real estate agent on both ends and we ended up becoming more than friendly with the whole family.) The family moved into a home up the block and he would often stop by to play with The Midget. We still run the occasional stray letter or package for them that lands on our doorstep over to their house.
Now, he has leukemia and some friends are putting on a benefit this weekend for him. It includes a golf outing, food in the town park and a series of raffles. There are silent auctions, T-shirt sales and other similar things happening to raise money to help his family pay what have to be astronomical medical bills.
I learned a long time ago while publishing a study in a journal of thanatology that I was an “instrumental griever.” The term came from the attempt to de-gender the idea of what had previously been deemed “masculine” and “feminine” grieving behaviors. Intuitive (formerly feminine) grievers deal with death, sadness and loss through things like crying, wailing and emotional expression. Instrumental (formerly masculine) grievers feel the need to “do something” even if that “something” has no hope of actually fixing the problem. People talk about instrumental grievers starting a MADD or SADD chapter after losing a child in a drunken-driving accident or carving a tombstone/memorial to commemorate the departed. The idea is that we act, even in the face of overwhelming odds that what we do won’t matter worth a pinch of shit of a difference. We’re not going to stand there with thumbs in our asses just waiting to “take it” from whatever is fucking with us.
Twenty minutes after I learned of all this, I was tearing through my basement, looking for things I could donate. I found the Facebook page for this event and discovered they were taking “silent auction baskets” to help raise money. What I saw was really nice stuff but most of it had a similar vibe: Cooking stuff, food stuff, grilling stuff, some lottery stuff… I figured some sports stuff might make for a nice complement to this, so messaged the folks in charge and asked if they were still taking donations.
They were, so there I went… The instrumental griever on a mission.
I started with the idea of one thing and ended up putting together four baskets of stuff: A collection of Packer items, one of Brewer items, one of “man cave” items and one a labor of love. The Mitchell and Ness Bart Starr jersey I always wanted but never wore? Fuck it. It’s in there. The autographs I gathered at the Lombardi open from Packer hall of famers? In the fucking box. The autographed football I had from somewhere? In there. The Max McGee autographed card I scored somehow? Tossed in without a second thought.
A Bob Uecker autograph that forced me to run across a golf course and wait for him to give enough of a shit to let his bouncer let me ask? Yep. Brewer Box. Autographed Gorman Thomas ball? Somebody’s gotta want that. The Robin Yount Rookie Card in about a two-inch-thick bulletproof plastic case? In there. Cards, posters, pennants, game-worn jersey card… I just kept adding to it. I yanked one of my newest neon signs off the wall and carefully walked it up to the truck. I tucked it next to the giant NFL Coors light mirror.
Then, I built a binder full of all my favorite refinishing projects and topped it off with a “gift certificate” for me to fully refinish ANY item somebody wanted me to rework. I don’t care if it’s a chair or great grandma’s fully dining room set. You win the bid, you make me your bitch. I once told my buddy Matt about wanting to do this for some sort of charity thing and he asked, “Don’t you worry that someone is going to make you redo something ridiculously large and it’ll cost you a ton?” Nope. Don’t give a shit. You got the cash, you win the bid, you get the job you want done. I did put in a caveat about pianos and wooden floors, as I’m not moving either of those, but for the most part, you get what you want.
Just help this kid…
I spent last weekend at a card show where I added yet another half-dozen bobbleheads to my already ridiculously huge bobblehead collection. Until I heard about Jacob, I had planned to spend the weekend trying to build some scaffolding to hold more of those damned things in my office. Now, it feels borderline pointless. What sits in my mind is not flipping furniture or going rummaging, but this image in my mind of his round, little face. The thick glasses, the almost impish smile. The superhero T-shirts he wears and how he’d march up the driveway while I was working on something or other and ask if my kid could come out and play.
I still see him and his folks last Halloween. He came dressed as Harry Potter. His tiny sibling, still in a stroller, was dressed as Hedwig. He had been feeling better that year. I threw as much candy as I could into their buckets until his folks basically made me stop.
I’m torn daily between between two wildly swinging emotional states:
- Persistent workaholic urgency. I have this almost guttural urge to do something, anything more to help these people and make this kid’s life somehow a little better. My baskets of shit aren’t going to cure cancer or make him better. I know that. And yet, here I am trying to figure out something else I can do that will. My wife gets it: She’s thinking about how she can make “freezer dinners” for their family so they don’t have to cook and can still have nice meals. We have to do SOMETHING.
- Blind visceral rage. I hate politics so much because it always feels like emotionally detached deities playing chess. The pawn doesn’t bleed or cry when you sacrifice it for something else. The rook doesn’t know it will die in three moves because you chose for that to happen.
But guess what, assholes? The people you serve AREN’T FUCKING CHESS PIECES. We’re in the middle of yet one more attempt to “repeal and replace Obamacare,” this one even worse than the last one. Why? Because we said we would, that’s why? What’s in the bill? We don’t know, but what we have is “like Thelma and Louise” going off a cliff, so this has to be better. How do you know that? Have you read this thing? No.
This kid is 9 years old and is basically one giant pre-existing condition. I’m sure he’s not the only one out there like this. I have no idea how Jacob’s insurance works, but if any single kid like Jacob gets fucked over just so you, Mr or Ms. Congress-critter, can say you “won” and defeated the evil Obama-Kenyan-Socialist, you need to be on the back end of Ezekiel 25:17.
This uncertain brevity of life has always scared me. Funerals make me twitch. Terminal illness horrifies me. Even though I’m a Catholic and I have that “whole better place” waiting on me (I hope), I hate change and the unknown. I’m basically Jack Burton in a a fucking elevator: In the midst of magic, afterlife and the unknown descending upon me, I’d rather climb up a three-story elevator cable because it’s real and I can touch it.
If you feel the same way, please give this page a look . Jacob deserves all the help he can get right now, whether it fixes the problems of the world or not.